Gillian Zannos wrote in to publicise a dinner and auction being held by the Alexi and Me campaign at Col’cacchio in Westlake on the 28 February 2013. Not knowing anything about the campaign I asked her for more information and received the following reply from this remarkable mom.
Alexi is my youngest son, and has a condition called Hypomelanosis of Ito, which is the cause of his epilepsy.
When Alexi’s seizures started at the age of 2y9mths, my coping mechanism was to educate myself about the condition.
What stood out for me, is just how much still remains to be researched and understood.
When I came to know of a proposed research through The Red Cross Children’s Hospital, I was immediately interested.
The extensive data that is already sitting at The Red Cross Children’s Hospital, is in itself a gold mine.
Unfortunately funding remains very difficult to acquire, and as of yet, the research has not been able to go forward.
It was at this point, the seeds were sown for the creation of The Alexi and Me campaign.
We are fundraising for this research into epilepsy syndromes – some of the most debilitating forms of epilepsy in children.
We hope to not only make this a reality, but also be a part of funding and education programme for Sub Saharan Africa, which will incorporate traditional healers, trying to eradicate the cultural stigmas and misconceptions that exist.
All proceeds from the dinner and auction at the end of February go to the campaign.
Should you wish to assist Gillian in the work that she is doing give her a call on 084 6811227. See also www.alexiandme.co.za
Also coming up:
FOR FITS & GIGGLES
– Artscape Theatre
– 6 March 2013
– R175-R200 tickets, booking through computicket.
– TIME 20H00
Comedy line up includes GINO FABBRI, SIV NGESI, ANGEL CAMPEY, CARL WEBER AND KG MOKGADI
An enigmatic mix of some of South Africa’s finest stand up comedians come together for the sake of children with epilepsy in ‘For Fits and Giggles’. Outrageous funnyman Gino Fabbri teams up with comedians Angel Campey, Siv Ngesi, Carl Weber and Kagiso ‘KG’ Mokgadi to bring you a show packed with variety.
With offerings from a self confessed farm boy to the Ace of race, from an Italian stallion and the son of a sangoma to an angel that will make you want to high-five your six year old self, the show promises a line-up of non-stop laughter.
Join us for an evening of Comedy in aid of Epilepsy Research.
All proceeds go to the ‘Alexi and me Campaign’.
www.alexiandme.co.za or like us on facebook.com/alexiandmecampaign